Is it Tuesday yet? I'm SO ready to be done with my last cancer to do. This cancer treatment process is a constant cycle of destruction and rebuilding. This Tuesday's surgery will be the last destruction of my body when they remove the tumor. I'm ready to get on the other side of that and start the long process of rebuilding my body without (hopefully) any further steps backwards.
Last week I learned that this will indeed be the BIG surgery resulting in a permanent colostomy. My surgeon called and gave me the news. After such a good ultrasound and having my hopes high I was crushed. It was like having the wind knocked out of me. I tried to be strong and not be upset. But then I just started crying. And it was much needed. My body & mind have endured months of chemo/rad and related traumas.
The sole purpose of doing chemo/rad before surgery was to try to avoid colostomy. Otherwise I would have just had the "BIG" surgery right away. "So if my ultrasound results were so great WHY not try the lesser surgery???" screamed my head. After crying a while my heart told me a different story. The doctors are doing what's in my best interest. If I have a lesser surgery now I may not have a colostomy but would have a higher chance of the cancer recurring. Having the BIG surgery is the best way to avoid recurrence.
If I were a healthy 41 year old the situation might be different. Recurrence could be managed with another round of treatment etc. But lets face it. I'm not healthy. Just months ago I went to Duke to see if I'm a lung transplant candidate. Recurrence in months or a few years would not be a good thing. Would I be healthy enough at that point to fight cancer again? Also, any recurrence pushes the possibility of transplant further out. Duke requires that you be cancer free for two years to be a candidate. That means in December 2012 I'll be eligible for transplant again. My lungs can probably make it that long but any longer is questionable.
How horrible would I feel if I avoided colostomy but had recurrence and then didn't make it to transplant? The statement "vanity kills" rings true. I'd much rather have a colostomy and have a better shot at making it to transplant. My docs have this ultimate goal in mind even though I'd like for them to let me take the easy way out and do the lesser surgery.
The last few days I've moved through a wide variety of emotions. Anger, disbelief, dread, fear, resignation, acceptance, etc has been my progression. Today I feel up to the challenge and strong enough to get through it. Positivity is back in play :). It's been a long and winding road but I can almost see the end.
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I LOVE YOU STEPH! I am sending positive vibrations and thoughts your way all week! You area amazing and thank you for being brave to share your journey through it all. It has helped in so many ways.
ReplyDeletehttp://www.youtube.com/watch?v=whKUTowVmpE
Reggae always feels GOOOD!
You CAN do this, Steph! I know how strong you are and how many people love you and respect you. I am sending all of my positive thoughts and love your way, friend! Fight the good fight, and hang in there! Love, Meg
ReplyDeleteYou are so right, vanity does kill. I had vanity issues before my transplant. I'm glad I didn't let it kill me. I hate to hear about the colostomy, but Thank The Lord you will be cancer free and can concentrate on getting back to Duke to get you some new lungs! I'm praying for you!
ReplyDeleteSteph, I'm sorry to hear that you were faced with what probably felt like another setback. And good for you to let all those emotions out -- better out than in, especially with all you've been going through lately. A good rage and cry always makes me feel better. The big surgery isn't what we were hoping for, but you are so amazing for being able to see the forest for the trees and keeping in mind that the ultimate goal is to get you healthy enough for a transplant as quickly as possible. Your spirit is stronger than ever for you letting yourself first feel the fear and frustration and anger, etc. That spirit will continue to get you through. You're in our thoughts as you lead up to tomorrow, and we'll be sending warm, healing vibes your way during and after your surgery. Love, Kristin and Bill
ReplyDeleteHeard about your surgery from Skipper...although we don't know eachother, I'm sending you my good wishes for the day and beyond. Go girl!
ReplyDeletexo