Still in the hospital...but will be at Festiv-ale tomorrow even if I have to get a special pass from the hospital :). You can buy discount tix at Kahn's Fine Wine & Spirits until tomorrow @ noon. They are at 53rd & Keystone Ave. If you can't attend please consider donating to help cure this disease and help extend the lives of all my much younger CF cohorts. You can donate on-line at http://indiana.cff.org/festivale09
I'm getting better every day but it is a slow process and I am an impatient or should I say inpatient woman. My pleurisy/pneumonia is getting better every day. Still coughing up a decent amount of stuff every session with the respiratory therapists (3 times per day). Hope to get released from the hospital by Sunday but you never know. My docs & I have decided just to take things one day at a time. The most important thing is that I get really cleared out before I return home. If I'm not discharged tomorrow AM, Dr. Goodman will get me a pass so I can leave to attend Festiv-ale.
It's very important to me to go to Festiv-ale for several reasons. The one single most important reason is to share my story about living with CF. I do this not for the limelight (although I must admit it is fun speaking) but rather to help save the lives of those much younger than me. You see their lungs are much healthier than mine and they might actually have a chance at a more "normal" life if we can get them the best meds possible. I really don't want them to go through what I am/will go through on the road to an eventual transplant (most likely). My lungs are pretty trashed but hopefully I can keep things going until 50 and then get a transplant. OK maybe I'm an eternal optimist but what the heck ;)
Another reason for attending the event is to thank all my family, friends, CF staff, committee members, sponsors, brewers, restauranteurs, attendees for all the help this year. It's been quite a bit of planning in a short amount of time and you all have been so wonderful!!!
My last reason to attend is purely selfish. I love a good party and I love beer.
Cheers and see you all tomorrow.
Steph
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Stephanie, you are so hardcore it defies description. As I sit here with my slight chest congestion from a seasonal cold and think back on my lung issues that were dealt with and put back on the shelf, I think about all the work you do every day to keep yourself healthy. You are an amazing person and I am pleased to be your friend.
ReplyDeleteSmack Randy on the butt for me.
xo
AB
ps hope Festiv-ale went well! You has bootleg of the radio interview?